Participate in Studies
The Churg-Strauss Syndrome Association encourages patients to consider participating in research to help further an understanding of CSS/EGPA. There are over 6,000 rare diseases and funding is competitive, so an enthusiastic patient population can make a difference in both the design and the funding of clinical research. Knowledge gained from a better understanding of CSS may be useful in furthering an understanding of the vasculitic process in any of the vasculitides and an understanding of the role of the eosinophil may help with other hypereosinophilic disorders as well as with the allergic response in general.
The National Institutes of Health has developed extensive guidelines to help patients and their families make informed decisions about participating in research.
In addition, there is an inspirational section with personal stories from patients and researchers who have been involved in clinical trials. Visit here
There is also a very important section that informs patients about how to find clinical trials nationwide and worldwide. Visit here
At the Clinicaltrials.gov site linked to on the NIH website, one can search for trials by typing in key words. Typing in "Churg Strauss Syndrome” shows 19 results, while there were 11 result for eosniophilic pneumonia,
and 15 results for rituximab and vasculitis.